Et syngende folk,
A singing people,
— Motto of the
Other Norwegian Singing Associations:
Nordic Singers’ Association
Other Links of Interest
Please note that my intent is not to make this a PCNSA-Parkinson’s Disease Support Group, but to offer a few thoughts from my experience with Parkinson’s which, I hope, may help many of us — with the disease or not — deal with aspects of it. This is not medical information or advice and should not be construed as such or a substitute for normal communications and relations with one’s medical professionals.
My name is Brian Rase and I am: (1) a Registered Pharmacist by profession, now retired; (2) the son of parents who were both diagnosed with Parkinson’s Disease; (3) active in Parkinson’s support and research programs; (4) an advocate for a number of individuals with Parkinson’s Disease; and (5) I carry the diagnosis of Parkinson’s Disease myself. I believe I have had exposure to and experience with the disease in my career and life, which
We, as members of an ethnic northern European genealogy — Norwegians, the other Scandinavians, northern Germans and surrounding populations — carry a prevalence of Parkinson’s Disease which is slightly but statistically higher than the general population.
Given that factor, the aging of our group, which in itself produces a higher incidence of Parkinson’s Disease, and varied familial and environmental factors, we might expect to see a slightly higher incidence in our membership. Studies suggest that our Sangerfest group of 132 singers might have one or two members with a diagnosis of Parkinson’s Disease. Considering the number of conversations I have had and observations I have made, admittedly somewhat subjectively, I believe the incidence of Parkinson’s Diseasee in the PCNSA is higher than the general population by a factor of three or four, and for what reason, I do not have a clue.
That being said, “we are what we are,” so let me put on my advocacy hat and conclude with a few thoughts from my own experience.
Finally, and on a personal note, and I know this is not an exclusive, but The Norsemen are a major part of my support system. They helped me through my major cancer fight over five years ago and they are helping me through this one. Apart from the fact that I enjoy singing — and singing with my friends — this is a major part of my therapy, and I will do it as long as I can.
Please feel free to contact me with any comments and thoughts at: <email@example.com> or 541-686-2733 and check the following links to some select information resources.
Parkinson’s Disease Information and Resources:
The following two organizations are more involved in genetic research: